SCN2A Voices

In celebration of International SCN2A Awareness Day on February 24th, we explore how SCN2A, a rare genetic disease, impacts each child. You’ll hear from four moms with four very different children. They will show us what life has looked like for them since their diagnosis and what they are doing as a result of knowing the genetic cause for their children’s medical conditions.  A BIG thank you to the four parents who shared their voices and stories for this episode. Katie Loosley  Nikki Beasley Jenna Puteri Kris Ray Other episodes from SCN2A parents Seizing Joy and Grace with Tracy Umezu Growing a Family Gratefully with Rachael Lividini A Dad's Eye View  The Art of Supporting the Special Needs Mom Links FamilieSCN2A Foundation FamilieSCN2A Global Support Group SCN2A Related Autism & Epilepsy: The FamilieSCN2a Foundation SCN2A Australia SCN2A Insights Podcast SCN2A Families UK - FB page SCN2A Europe Simon Searchlight - SCN2A (Research) SPARK for Autism - SCN2A A Walk with Jo Facebook Page Eye Gaze - Think Smart Box Look to Learn - Activities for Eye Gaze Children’s Hospital of Philadelphia - Dr. Ingo Helbig Children’s Mercy - Dr. Coffman