Ep. 98: Providing Rest for Caregivers of the Disabled with Jess Ronne

Today we’re welcoming Jess Ronne to the podcast. Jess is the author of Sunlight Burning at Midnight,  founder of a non-profit, and mom of 8 including  her son, Lucas, born with profound disabilities. Jess became a widow and single mom at 33, after losing her husband to a brain tumor. She had 4 children under 6, and after several years, she met Ryan Ronne, a widower with 3 children. They married and had a child together in 2015. At that point, her son Lucas was entering puberty, and raising him became more challenging every day. She and Ryan sought out resources and support for caregivers, but, try as they might, they couldn’t find any community  for caregivers desperate for a break. So she founded her own non-profit, The Lucas Project, to help families with special needs. She realized early on, her efforts needed to include respite care for the caregivers, advice to help all of us to recognize their needs, and practical ways we can help.  Not only do disabled individuals need lifelong care, but their caregivers do as well. Resources & Links: Sunlight Burning at Midnight, the new book by Jess Ronne Unseen: How We’re Failing Parent Caregivers and Why it Matters, an unfiltered, honest documentary that takes a glimpse into the lives of the Ronnes, to enable a change for millions of caregivers and their families. The Lucas Project, providing recognition, respite and resources to family caregivers of those with special needs. Jess Ronne's blog, jessplusthemess.com The Ostrich and Other Lost Things by Beth Hautala