The Changing World of Cystic Fibrosis Nutrition With Jacqueline Lowdon and Kerry-Lee Watson

With cystic fibrosis awareness week being 17th-21st June 2024, in today’s episode we put the focus on CF. Cystic fibrosis is a genetic condition affecting the CFTR protein and in recent years the use of CFTR modulators have changed the game for the management of this condition. In today’s podcast I’m delighted to be joined by two experts to discuss the nutritional implications of this change as well as the wider landscape of nutrition in the management of cystic fibrosis. Kerry-Lee Watson and Jacqueline Lowdon are both specialist CF dietitians - Kerry works with adults and Jacqui in paediatrics, and together they co-chair the British Dietetic Association’s CF specialist group. Jacqueline is a clinical specialist paediatric cystic fibrosis (CF) dietitian and has worked at Leeds children’s hospital for the last 6 ½ years. CF has always been a paediatric speciality that has held her interest since starting out in paediatric dietetics over 25 years ago. Jacqueline presently co-chairs the BDA CF dietitians specialist group and is a member of the CF Trust QI group. She has also contributed to the CF Toolkit developed by NHS England and has recently been involved in the UK CF Trust standards for the Clinical Care of Children and adults (to be published in June 2024). Her recent publications include: Evolution of nutritional management in children with CF – a narrative review. JHND Feb 2024 and Standards for the care of people with CF – recognising and addressing CF health issues. J of CF Nov 2023. Kerry works as an adult cystic fibrosis dietitian and is the clinical lead for CF dietetics at King’s College Hospital in London. She has worked in CF for over 20 years and alongside her clinical work she has also co-authored guidelines and contributed to published research in this field, including the CF Trust Nutritional Management of CF consensus guidelines and the CF related diabetes chapter in the British Dietetic Guidelines for Diabetes. As Co-Chair of the BDA CF Specialist group, Kerry has worked with Jacqui and many colleagues contributing to the CF Toolkit and CF Trust Standards of Care due to be published in 2024, additionally they have supported Nutrition bite size events hosted by the CF Trust. Show Notes: Jacqueline’s twitter: @JacquelineLowd3 Studies: • Impact of omega‐3 supplementation on children and adolescents patients with cystic fibrosis: A systematic review and meta‐analysis of randomized‐controlled trials. Pediatric Pulmonology. 2023;58:2219–2228. https://onlinelibrary.wiley.com/doi/abs/10.1002/ppul.26491 • Coffey MJ, Garg M, Homaira N, et al. A systematic cochrane review of probiotics for people with cystic fibrosis. Paediatr Respir Rev, 2021. 39: p. 61-64. https://pubmed.ncbi.nlm.nih.gov/32917517/ Other resources: • Cystic Fibrosis Trust: https://www.cysticfibrosis.org.uk • Cystic Fibrosis Trust Diet and Nutrition Leaflets: https://www.cysticfibrosis.org.uk/about-us/resources-for-cf-professionals/supporting-clinicians/resources-for-clinicians/nutrition-leaflets • Cystic Fibrosis Specialist Group - British Dietetic Association (BDA): https://www.bda.uk.com/specialist-groups-and-branches/cystic-fibrosis-specialist-group.html • BDA CF Specialist Group Twitter:@bda_cf • European Cystic Fibrosis Website and Committee: https://www.ecfs.eu • UK Cystic Fibrosis Registry: https://www.cysticfibrosis.org.uk/about-us/uk-cf-registry