Rare Disease Parents Create a New Model for Drug Development: Nicole Johnson, Co-Founder and Executive Director of FOXG1 Research Foundation

Tune-in to this fascinating Raise the Line episode with host Lindsey Smith to find out how the parent-fueled FOXG1 Research Foundation is aiming to bring a rare disease therapy to market in less than half the time and at a fraction of the cost than the industry standard, and how this model might impact research on other rare disorders. Foundation Co_Founder and Executive Director Nicole Johnson also describes her efforts to educate parents, teachers, and students about disability inclusion through her Joyfully Josie book series and “Live Joyfully” education programs inspired by her own daughter’s experience with this rare genetic condition.