The Power of Patient Organizations in Rare Disease Trials

SCRS Talks - A podcast by Society for Clinical Research Sites - Mondays

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In this episode, we'll explore the transformative power of collaboration and advocacy in the pursuit of life-altering treatments. Meike Madelung from IQVIA's EMEA Thought Leadership team takes us through a compelling case study featuring the AKU Society and its groundbreaking efforts in combating Alkaptonuria. Learn how patient organizations can help accelerate recruitment for rare disease trials.