123: Are stigma and social ostricization the biggest barriers to eradicating Hansen's disease: In conversation with Daisy Mansfield, Leprosy Mission

Shownotes:Not many people in the western world have heard of Hansen’s disease or Leprosy – for most who are familiar with it arouses fear and aversion. It is a tropical disease that occurs in more than 120 countries, has been referenced in the bible and Victoria Hislop wrote The Island inspired by a visit to Spinalonga, the abandoned Greek leprosy colony, which sold over a million copies.My earliest interaction with the disease was on the Main Street of the city I grew up in. Along the street, one aften came across a small group of people begging for alms, those badly affected being pulled on makeshift carts by the more able bodied. The easiest thing to do was to ignore them or pretend one could not see them or their plight. That was my first experience of shame. Shame at the lack of knowledge, confidence or ability to engage with respect with people disfigured and ostracised by disease. However, this is not about me but about people who are disenfranchised, excluded from accessing healthcare, education, economic opportunities and social support because of fear and misinformation.A couples of months back, I happened to be seated on the same take table at India Week as Sian Arulanantham, head of programmes and research of Leprosy Mission UK. We got chatting about the incredible work they are doing across the world and in India and I invited them to be a guest on my podcast to speak about the important work being done to eradicate an ancient disease that stigmatises and makes outcasts of over two hundred thousand people every year.In this episode of The Elephant in the Room podcast, Daisy Mansfield Policy and Advocacy Adviser at Leprosy Mission talks about the work being done in India and across the world. We spoke about a) how they deliver on their goals in this highly complex geography b) behaviour change campaigns for education and removing social stigma c) Strategies to empower individuals and families d) Roles models with lived experience of disability and stigma e) WHO 2035 goal for eradication of the disease and challenges to getting to the targetThe most important thing to remember is that if detected early, the disease is curable with multi drug therapy (MDT) and the good news is that the WHO has made MDT available free to all leprosy patients around the world (with the help of big pharma).Head to the podcast to listen and see how you can support the cause 👇🏾👇🏾👇🏾Episode Transcript:Sudha: Good morning, Daisy. Lovely to have you here today. I'm so glad that I met with Sian and Louise at India Week recently in London. And that's how I came to know about the work of Leprosy Mission UK. So, let's start with a quick introduction. Tell us a bit about yourself.Daisy: Hello. Yes. It's so nice to be with you on the podcast today. Thank you very much for having me. I'm Daisy and I work for the Leprosy Mission and have done for about three years now in a number of different roles. So, my current role is called a Programs and Advocacy Officer. Which means I am a point person, look after some of the projects that we fund in India and work in partnership with our team over in India. And previously I had roles in fundraising and also advocacy and policy working with UK stakeholders in parliament and also in international spaces such as the UN and WHO to advocate for people affected by leprosy.Sudha:...