17.2 Sharing the News that a Baby has Down’s Syndrome – Supporting Families

Series 17 - Episode 2: Sharing the News that a Baby has Down’s Syndrome – Supporting Families

Down’s syndrome is a genetic condition caused by the presence of a full or partial third copy of chromosome 21 in the body’s cells. It is sometimes shortened to “Ds” and in some countries called Down syndrome. Approximately one in every 1,000 babies is born with Down’s syndrome. In Scotland, around 70 babies are born each year, with an estimated 4,500 people currently living with the condition.

Screening for Down’s syndrome is offered in pregnancy, and families may make different choices: some may opt not to screen, some may choose to screen and continue with the pregnancy, while others may decide differently. Whatever the decision, midwives play a vital role in ensuring families receive clear, up-to-date, and compassionate information.

This session, led by Varshali Swadi, Professional Engagement and Development Lead at Down’s Syndrome Scotland, will explore how midwives can best support families when sharing news that a baby has Down’s syndrome. The session will also include a video from a parent speaker, offering insight into lived experience.

You will:

Gain up-to-date knowledge about Down’s syndrome, associated health issues, and learning profiles.

Understand how to provide sensitive support through screening, diagnosis, and the neonatal period.

Hear lived experience from a parent of a child with Down’s syndrome.

Learn about sources of support available for families and professionals.

Hosted by:

Sue Macdonald, Midwifery Expert; Host and Curator, Maternity and Midwifery Festivals/Midwifery Hour, Editor, Mayes Midwifery

Contribution from:

Varshali Swadi, Professional Engagement and Development Lead, Down’s Syndrome Scotland

Bev Insch, Parent Volunteer, Down's Syndrome Scotland

Supported by MATFLIX: ⁠⁠⁠⁠https://matflix.co.uk⁠⁠⁠⁠

Register to watch the next episode LIVE or attend a Maternity & Midwifery Festival: ⁠⁠⁠⁠https://mmf.eventbrite.com⁠⁠⁠⁠

Watch the live stream: ⁠⁠⁠⁠https://facebook.com/midwiferyforum/live