Theo's Story Part 1: Born with a Rare Genetic Condition featuring Alexis Simon

Shortly after Theo's birth, Alexis and her husband learned that their son was born with an ultra rare genetic condition (so rare, that it has no name except a jumble of letters and numbers). Alexis was told that Theo would not make it to be one year old. Fast forward to today, Theo is the most amazing little two year old boy.Theo’s family is desperate for more time with their “Teddy Bear.” The difficult decision has been made to proceed with correcting Theo’s heart defects this summer. T...