Ep 9 - Gen, PWS

Walking with Freya - A podcast by Anne Fricke

May is Prader-Willi Awareness Month! This episode is the start of a month long dive into the world of PWS and the ways in which families, doctors and organizations are fighting for the lives of our children. I spoke with Gen, the mother of a young girl with PWS. We share battle stories, tips for success and a few good laughs. This is a conversation between two mamas who have found themselves on similar paths and are trying to figure out which way to hold the map. This conversation is not just for PWS parents and caretakers, but for anyone trying to understand how to navigate the waters of having a child with special needs.